Hello and welcome to our family!! We have designed this blog to keep all of you updated on our family and to give hope for families of "O" babies. It continues to be a long road for our little girl
and we would like to share our journey with you.
Thank you for all your love and support.
~Jen, Matt, Kalista and Lawsyn~


Wednesday, April 20, 2011

Cardiology and Physical Therapy Updates

Cardiology Update:
We saw our cardiologist on Monday and he said Kalista's echocardiogram looks fine. He had no concerns, so we won't have to see him again until October.

Getting ready for bed

Physical Therapy Update:
We had a fantastic physical therapy session today. Kalista showed off all her skills and Ms. Tami was totally excited of all the new things she could do. Crawling still seems to be our biggest goal, but we have been encouraged to move on to one handed assisted walking. Woo hoo....one step closer towards running! We asked about what we should do about Kali's belly when she does start becoming more mobile and Tami told us to wrap her belly with an Ace bandage to give her more support if she falls.

Ironically, Ace bandage "compression wrapping" was one of our after-dinner family conversations as a way to shrink Kali's belly bump. We follow the blog of a family whose little girl has a giant omphalocele too and shares many of the same doctors as Kalista. They recently saw the same plastic surgeon we go to (Dr. Gosman) and compression wrapping was suggested as they await surgery. We also found out that she is preggos and due in July...congratulations Dr. Gosman! How will this affect any surgical decisions about Kalista? We're not sure...but we will keep you posted after our appointment with her next week.

Kalista proudly showing off her mode of transportation


*The Gift of Life*

If you know someone walking in a future March of Dimes walk, please support them and donate. Millions of babies born prematurely and/or with birth defects benefit greatly from the support of the March of Dimes. We will be missing our walk in San Diego because Jen is working and Matt will be getting off from his shift early that morning. The only person available is Kalista....and she can't walk by herself! Please put your feet in her shoes and pay it forward!

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