We saw Dr. Saenz, our surgeon, this morning and we are on track as far as her "O" goes. He ended up removing all of her Gortex patch that laid over her the previously exposed organs. It appears that skin is forming nicely over the area that he exposed last week and hopes that it will continue to do so over the section he removed today. When skin forms adequately, then we can take her home. She'll still have her bump, but we don't mind.
Kalista was enlisted in a Swallowing Study yesterday. She had to drink a contrast solution to image where the fluids go. It appears that she is a silent aspirator; meaning that the fluid mostly empties into her stomach, but a little bit trickles into her lungs. This is definitely not a good thing because fluid in the lungs can lead to infection and pneumonia. At this point in time, she will be using her NG tube 100% of the time for food intake until she grows and develops adult-like control. Can't imagine what it would feel like to get fluid down the "wrong pipe" all the time. Ouch!! We'll find out in four weeks, when they repeat the test, to see if improvements have been made.
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